If you would like to know advices, tips, or opinions of other patients or families who are experiencing the same things about your situation and who have achieved a great improvement in their lives, then sign up for the private Facebook group. This private group is managed by a resource of the association.
Here are various links for access to our 2 Facebook pages, our “YouTube channel”, Twitter and our LinkedIn page. These places are spaces for dialogue between the members of the association, a place for exchanging, sharing, testimonials, support and information.
There are no health professionals on this forum. No medical advice is given by the administrators.