Demystify hereditary angioedema

Through its website, the AOHQ and its social media platforms want to facilitate access for patients to a health professional and give them the tools for a constructive relationship with the latter. Clearly, the AOHQ DOES NOT OFFER CLINICAL ADVICE. It does not claim to suggest solutions to TREAT HEALTH PROBLEMS AND its content cannot serve as a SUBSTITUTE FOR APPROPRIATE HEALTH CARE.

Thus, the AOHQ does not see itself invested with the mission of commenting on the type of medication received by a patient, the choice of treatment being influenced by too many external factors independent of the treating physician such as the terms of reimbursement of the treatment or the rules of the authorities of the health system. The AOHQ also does not have to criticize the value of the treatment team but rather to ensure that each patient has access to a team competent in the treatment of the disease. In this regard, it ensures that this spirit is respected in public or private social networks and cannot tolerate deviations in this regard. The AOHQ wants to be an essential partner with the medical world and regulatory authorities for the benefit of the patient. It is in this context that the AOHQ is working to develop an application (Haero) that will allow better monitoring of patients and has also been involved in supporting research on hereditary angioedema to allow a better understanding of the disease, therefore improved intervention with the patient.

The information shared on its site is therefore provided for advisory purposes only and should be considered complementary, not replacing medical advice. The AOHQ makes every effort to provide relevant, accurate and up-to-date content, but it cannot guarantee that the content is free of errors and the AOHQ will not be liable for inaccuracies or omissions. The use of its website and social media platforms, its content and discussion forums are for advisory purposes and do not bind the association or its board of directors.

Despite the greatest care taken in creating the content of its site, it can in no way replace individual medical advice. Rather, it should be useful in order to conduct individual therapeutic discussions with a specialist doctor, on an informed basis.

Neither the AOHQ nor its members assume responsibility for any errors, for behavioral and therapeutic decisions based on them or, where applicable, for their unfavorable consequences.